What is Palliative Care? Myths and Truths

by | Nov 22, 2022

The son of a palliative care patient and physician with LifePath Hospice provide insight into palliative care while dispelling myths associated with it.

What is palliative care? There are many misconceptions people have when answering that questions. According to the World Health Organization, 56.8 million people worldwide need palliative care every year. Despite the need, one study showed 60 percent of Americans held at least one misperception relating to palliative care. Some believed it is only meant for patients who are imminently dying. Others believe it means an end to all curative treatment. And many simply believed it’s the same as hospice care. They are all wrong. So, what are the facts? A physician with LifePath Hospice and a Care Management Director for Orlando Health help dispel some of the most common myths.

Myth: Palliative Care is Only for People Who are Dying

Simply put, palliative care is not only for people who are dying soon. Yes, people who have chronic and terminal illnesses can benefit from palliative care, but the truth is, it can help many kinds of patients.

Dr. Seon Lee, LifePath Hospice Physician (left) treats a hospice patient at her home.

“It’s not only for people who are at the end of their lives,” said Dr. Seon Lee, staff physician with LifePath Hospice. “It can help all kinds of patients manage their symptoms, identify goals related to their care, and help make plans for the future.”

In addition to treating hospice patients, Dr. Lee treats patients involved with Chapters Health System’s pediatric palliative program.

For those patients and families,  it’s more than just symptom management. It’s a support system, that provides you the care you need so you can live your best possible life. For the Clacines family, it made all the difference for their son Luke. Doctors diagnosed him with Vein of Galen, heart failure and pulmonary hypertension, among other complications at birth.

Gabriel Calcines (left), son Luke Calines (center), and mother Emily Calcines (right) pose for a family photo.

“We decided for Chapters Health Pediatric Palliative Care to also be involved in his care in order to help us navigate all of the specialists while still putting the main focus on the big picture of Luke’s plan of care and what was best for his long-term care,” said his mother, Emily. ““Luke is now a thriving two-year-old, and we are so grateful to Chapters Health for their professional medical expertise and their unending compassion to support us.”

Myth: It is the Same as Hospice. An End to Curative Treatment.

No. It is not the same as hospice and it does not mean an end to curative treatment. Palliative care is comfort care with or without curative intent. It is an added layer of support that can work alongside specialists. It is appropriate at any age and at any stage in a serious illness.

Ivan Alvarado Aponte is very familiar with the misconceptions. In addition to being a Care Management Director for Orlando Health, his mother, Maida Vasquez, sought palliative care through Cornerstone Hospice & Palliative Care, a Chapters Health affiliate.

Cornerstone Palliative Care patient Maida Vaszuez (left) with her son Ivan Alvarado Aponte (right)

“There is a big difference between palliative care and hospice,” said Aponte. “It’s a big misunderstanding. Palliative care can help you in many ways, including serving as a smooth transition to hospice. Everyone at Cornerstone has been wonderful, but big kudos to Dr. Collazo for his caring, big heart, and compassion. He has been a tremendous support to our family.”

Myth: Palliative Care Only Treats Pain and They Will Just Prescribe Opioids

There are two misconceptions tied to this myth. First, Opioids are not inherently harmful in, unless the patient has a history of abuse. Two, palliative care treats the whole person. It can include medications and non-medications to treat pain.

“Palliative care improves quality of life by treating pain and managing symptoms,” said Dr. Lee. “While opioids are an effective treatment method, not every symptom needs to be managed by medication.”

There are complimentary therapies that can help manage symptoms such as pain, nausea, shortness of breath and fatigue. Patients and their families can also find emotional support.

Myth: It Hastens Death

In my opinion, this is the most egregious misconception of them all. The goal is never to hasten a patient’s death, ever. The care team wants what is best for all their patients and they strive to find a realistic balance with the patient’s goals.

“It plays an important role in enhancing a patient’s quality of life by improving their ability to achieve personal goals such as symptom control and social support,” said Dr. Lee.

Yes, palliative care can help many patients with terminal illnesses. However, not every patient receiving palliative care is imminently passing away, so why would the care team want to exacerbate their chronic condition and hasten a patient’s decline? Again, the goal is help achieve what patient wants out of life and manage symptoms.

Myth: I Won’t Get to See My Regular Doctor

“You would be able to see your primary physician,” said Dr. Lee. “The team is an extra layer of support and works in partnership with your primary physician.”

Palliative care providers are specially trained consultants that work with other providers to assist in the management of symptoms and quality of life. They do not replace your regular doctors.

Is palliative care right for you?

Ultimately, if you’re experiencing pain, stress and other symptoms related to a serious disease, it can likely be of benefit. Serious illness can include but isn’t limited to cancer, heart disease, respiratory diseases, kidney failure, Alzheimer’s, and multiple sclerosis. Again, some of the diseases can progress over many years, but palliative care can help patients at any stage of their disease process.

Chapters Health System is committed to serving the needs of its patients, families, caregivers, health providers, partners, and communities.

For more information, please call our helpful Chapters Health team at 1.866.204.8611 or Contact Us.

Austin Mudd

Austin Mudd

Austin Mudd, Media Relations Specialist at Chapters Health System, is responsible for external communications for the nonprofit organization. Email: [email protected]

About Us

Established in 1983 as a community-centered, nonprofit entity, Chapters Health has grown exponentially through its radical approach to healthcare that leverages a one-of-a-kind system to support patients, families, and caregivers across the country, while remaining grounded in the mission of taking care of patients, or taking care of those who do®.

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John J. Whyte, MD, MPH

CEO and Executive President,
American Medical Association

John Whyte, MD, MPH serves as the CEO and Executive Vice President of the American Medical Association, the nation’s largest physician organization.

Prior to the AMA, Dr. Whyte served as the Chief Medical Officer at WebMD, leading initiatives that expanded strategic partnerships, created new business opportunities, and positioned WebMD at the forefront of digital health innovation. He was a pivotal force in evolving WebMD’s digital platforms from content delivery engines to powerful tools connecting consumers directly to care, establishing critical new revenue models. He is a recognized leader in healthcare delivery and regulation and is consistently named as one of the Top 20 Health Influencers.

Before joining WebMD, Dr. Whyte served as Director of Professional Affairs and Stakeholder Engagement at the U.S. Food and Drug Administration’s Center for Drug Evaluation and Research. There, he spearheaded groundbreaking initiatives to modernize clinical trial design, expand diversity in research, and advance the regulatory use of real-world evidence — efforts that continue to impact patient-centered drug development today.

Earlier, as Chief Medical Expert and Vice President of Health and Medical Education at Discovery Channel, Dr. Whyte launched educational programming that captured both medical and mainstream audiences, successfully aligning mission-driven health education with corporate funding strategies and building new multimedia brand identities.

At the Centers for Medicare & Medicaid Services (CMS), Dr. Whyte played a pivotal role in formalizing Medicare’s national coverage decision process, directly shaping payment policies and advancing innovative models to improve healthcare outcomes. His experience at CMS demonstrates a deep understanding of health policy, reimbursement strategies, and the critical intersection of clinical innovation and payment models.

A board-certified internist, Dr. Whyte completed his MD at Hahnemann University School of Medicine, his residency at Duke University Medical Center and earned his MPH in Health Policy and Management at Harvard University. He previously served as a health services research fellow at Stanford University. An accomplished author, Dr. Whyte has written extensively for both professional and consumer audiences, including five best-selling book

Andrew Molosky on podcast

Dr. Venki Ramakrishnan

Nobel Laureate

Venki Ramakrishnan is an American and British molecular biologist who shared the 2009 Nobel Prize in Chemistry. He currently works at the world-renowned MRC Laboratory of Molecular Biology in Cambridge, England and from 2015-2020, he served as President of the Royal Society, one of the world’s oldest scientific organizations. He is best known for his work on protein synthesis, the process by which genetic information is used by the ribosome to make the thousands of proteins that make life possible. This process is fundamental to all life and its dysfunction leads to many diseases as well as to aging. He is a member of the US National Academy of Sciences and was knighted by the British government in 2012. In 2022, he received one of Britain’s highest civilian honors, the Order of Merit, which is restricted to 24 people across all fields.

In addition to his academic work, Ramakrishnan is a science partner of the venture capital fund Ahren Innovation Capital, and on the boards of the AI-based drug development company, Isomorphic Labs, and the British Library. He recently co-founded RNAvate, an RNA therapeutics company based on stable, next-generation RNA molecules. In the public arena, he played a leadership role when he was president of the Royal Society, including dealing with the consequences of Brexit and helping convene the Society’s response to provide advice during the covid pandemic and did a significant amount of public engagement including articles in the press and appearances on national media.

Ramakrishnan is the author of two popular books: Gene Machine (2018), a very frank scientific memoir about the race for the structure of the ribosome that led to the Nobel Prize; and Why We Die: The New Science of Aging and the Quest For Immortality (2024), which looks at the biology of aging and efforts to combat it.

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Marwa El-Menshawi, MD, MPH

Chief Operating Officer, PACE Chapters Health System

Marwa El-Menshawi, MD is the Chief Operating Office for Hope PACE. She is a triple board-certified physician, specializing in Family, Geriatric and Hospice Medicine. Dr. El-Menshawi's focus is on improving the lives of those affected by advanced age and serious illness through innovation in high complexity and value-based care. She has almost 20 years of clinical, academic and healthcare leadership experience.

Dr. El-Menshawi is a member of the American Academy of Family Medicine and the National PACE Association. She serves on the Mayor's Committee for Livability and Healthy Aging, focused on serving the community through advocacy and education, recommending and promoting programs and initiatives that benefit older adults.

Dr. El-Menshawi earned her Medical Doctorate as a Magna Cum Laude graduate from the University of Alabama School of Medicine and was awarded the distinguished membership into the Alpha Omega Alpha medical honors society, along with multiple academic achievement awards including the American Medical Women's Association Glasgow-Rubin Achievement Citation, the Merck Manual Award and the Peacock Teaching Fellowship. She completed her residency in Family Medicine and Certificate of Added Qualifications in Geriatric Medicine following a Geriatrics Fellowship at Advent Health in Orlando, FL. She serves as a Clinical Assistant Professor of Geriatrics at the Florida State University College of Medicine and an Assistant Professor of Family Medicine at the University of Central Florida College of Medicine.

Andrew Molosky on podcast

Andrew Molosky

President and CEO, Chapters Health System

Andrew Molosky is the President and Chief Executive Officer of Chapters Health System, the country's defining chronic illness organization, comprised of more than 30 different companies and programs, including the nation's largest nonprofit hospice network, PACE, value-based care such as CareNu, a Medicare Advantage plan, managed services organizations, technology solutions, advanced illness offerings, and more.
Established in 1983 as a community-centered, nonprofit entity, Chapters Health has grown exponentially through Molosky's innovative approach to healthcare, becoming a national leader recognized by Great Places to Work, Fortune, USA Today, and others for being a top place to work.
As a leading voice in healthcare, Molosky is routinely engaged as a consultant, speaker, and mentor. Molosky is modeling and leading across several industries concurrently.
Molosky has more than 20 years of experience spanning an array of geographies and organizations, including publicly traded, privately held, and nonprofit. He completed his undergraduate work at the University of Toledo and his Master of Business Administration from the Ken Blanchard College of Business at Grand Canyon University, additionally holding his Fellowship from the American College of Healthcare Executives.

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